Request for Proposal: Registry Development for the American Society of Pain and Neuroscience
Submission Deadline: August 15, 2025
Introduction
The American Society of Pain and Neuroscience (ASPN) is seeking proposals from qualified vendors to design, develop, and maintain a comprehensive clinical registry focused on interventional pain and spine procedures. This registry will support ASPN’s mission to improve patient outcomes, inform quality improvement initiatives, and support research and policy in value-based care.
We invite vendors with experience in healthcare data platforms, clinical registries, and quality improvement systems to submit detailed proposals outlining their capabilities, timeline, pricing model, and data governance strategy.
Section 1: Company Profile and Relevant Experience
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Company Overview
- Brief history, mission, and core services.
- Organizational structure, leadership team, and key personnel.
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Experience with Medical Societies
- Have you previously worked with professional medical societies?
- If so, describe the scope and outcomes of such collaborations.
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Experience in Interventional Spine or Surgical Specialties
- Have you worked with registries in the interventional spine, neurosurgery, orthopedics, or pain management domains?
- Provide examples or case studies.
Section 2: Registry Development and Customization
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Customization to ASPN’s Goals
- Can your solution be tailored to meet ASPN’s specific goals in benchmarking, quality improvement, and value-based care?
- What is your process and timeline for implementing custom features?
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Implementation Plan
- Provide a detailed proposed timeline from contract signing to full implementation, including key milestones such as:
- Needs assessment and discovery
- Platform customization
- Pilot testing
- Training and onboarding
- Full launch and reporting
- Provide a detailed proposed timeline from contract signing to full implementation, including key milestones such as:
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Scalability and Future Growth
- How scalable is your platform for future growth, including additional modules or integration of AI-driven analytics?
Section 3: Data Access, Ownership, and Compliance
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Data Access and Analytics
- How will ASPN and its members access the collected data?
- What analytics dashboards and reporting tools are available?
- Can you provide real-time insights or longitudinal tracking?
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EHR Interoperability and Standards Compliance
- Is your system interoperable with major EHR systems (e.g., Epic)?
- Do you support HL7, FHIR, or other standardized protocols?
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HIPAA and Data Compliance
- Provide your HIPAA compliance plan, data security protocols, and any certifications.
- What mechanisms ensure data accuracy, including audit trails and validation processes?
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Data Ownership and Intellectual Property
- Who retains ownership of the data?
- Are there shared intellectual property rights for algorithms, benchmarks, or insights developed?
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Ethical Oversight
- Do you have an established ethics board or oversight committee?
- Will ASPN be able to nominate members to serve on this committee?
- How are conflicts of interest managed?
Section 4: Revenue Model and Cost Structure
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Financial Considerations
- Do you expect the registry to be revenue-positive for ASPN?
- Provide a projected revenue model for years 1–5.
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Revenue Sharing
- What percentage of data licensing or related revenue will be retained by ASPN?
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Cost Breakdown
- Outline all costs, including:
- Initial setup and development fees
- Tiered pricing or per-user charges
- Optional features or add-ons
- Ongoing maintenance and support costs
- Marketing, onboarding, and educational resource costs (if applicable)
- Outline all costs, including:
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Cost to ASPN During Implementation
- Identify all projected costs to ASPN during the registry development, implementation, and marketing phase.
Section 5: Operational Considerations
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Workflow Integration and Burden Minimization
- What strategies are in place to streamline data collection with minimal disruption to clinical workflows?
- Will there be integration with practice management tools or automated data entry?
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Support and Training
- What ongoing support will be included (e.g., help desk, user training, documentation)?
- Will ASPN have a dedicated account manager?
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Monitoring and Quality Assurance
- How do you ensure the accuracy and integrity of data?
- Are there built-in systems for regular data audits, cleaning, and feedback?
Proposal Submission Requirements
- Completed responses to each section above
- Examples of relevant registry or quality improvement work
- Key team member bios and roles
- References from at least two similar clients
- A full pricing proposal (including optional services)
Contact for Inquiries and Submissions
Please direct all RFP-related correspondence to:
Nomen Azeem, MD, and Marcin Karcz, MD
Lead, ASPN Registry Taskforce
American Society of Pain and Neuroscience
Email:
azeemnx@gmail.com;
drmarcinkarcz@gmail.com